The experiences, attitudes and knowledge of medical personnel towards women with intellectual disabilities being mothers

Česká verzia

Authors: J. Bernoldová ¹; Z. Adamčíková ¹; I. Strnadová ²; J. Klusáček ³
Authors place of work: Pedagogická fakulta UK, Katedra speciální pedagogiky, Praha, vedoucí katedry doc. PhDr. L. Květoňová, Ph. D. ¹; University of New South Wales, School of Education, Rm., Sydney, Australia, Head of School, Professor of Education prof. C. Davison, PhD. ²; Fakulta sociálních věd UK, Praha, Katedra veřejné a sociální politiky, vedoucí katedry doc. PhDr. A. Veselý, Ph. D. ³
Published in the journal: Ceska Gynekol 2016; 81(1): 41-46

Summary

Aim:
The aim of the study was to analyse experiences, attitudes and knowledge of Czech medical personnel towards women with intellectual disabilities being pregnant and/or mothers.

Type of study:
Survey research.

Setting:
Charles University, Faculty of Education, Department of Special Education, Prague.

Research methodology:
There were 175 medical personnel who completed a survey. The statistical analysis was conducted in a statistical program SPSS21. The data was analysed using the factor analysis approach.

Findings:
The majority of respondents were medical personnel with decades of practice in their fields, however with minimal experiences with women with intellectual disabilities who are pregnant and/or mothers. The respondents had a relatively low level of knowledge about services available to these women. The participating medical personnel identified the diverse needs of women with intellectual disabilities during antenatal period, childbirth and in a postnatal period, however they also believed that these needs are not addressed accordingly. The majority of participants believed that women with intellectual disabilities can be successful mothers and should be allowed to have children in their custody. However more than half of the medical personnel admitted the possibility of abortion, and two thirds of the participants would not allow women with intellectual disabilities to make a decision about how many children they wish to have.

Conclusion:
Information and development of practical competencies in providing complex and individually oriented support to women with intellectual disabilities needs to be included in systemic education of medical personnel.

KEYWORDS:
intellectual disabilities, motherhood, medical personnel, attitudes, knowledge, experiences, survey research

Zdroje

1. Aulagnier, M., Verger, P., Ravaud, J., et al. General practitioners‘ attitudes towards patients with disabilities: The need for training and support. Disability, 2005, 27, 22, p. 1343–1352.

2. Černá, M. Česká psychopedie: speciální pedagogika osob s mentálním postižením. Vyd. 1. Praha: Karolinum, 2008, 222 s.

3. Feldman, MA., Case, L., Llewellyn, G. Teaching child-care and safety skills to parents with intellectual disabilities through self-learning. J Intellectual Developmental Disability, 1999, 24, 1, p. 27–44.

4. Feldman, AM., Walton-Allen, N. Effects of maternal mental retardation and poverty on intellectual, academic, and behavioral status of school-age children. Amer J Mental Retardation, 1997, 101, p. 352–364.

5. Foucault, M. Je třeba bránit společnost: kurs na College de France 1975–1976. Vyd. 1. Praha: Filosofia, 2005, 281 s.

6. Höglund, B. Pregnancy, childbirth and midwifery care among women with intellectual disability in Sweden: Epidemiological and descriptive studies. Uppsala, 2012. Disertační práce. Universitatis Upsaliensis.

7. Höglund, B, Lindgren, P., Larsson, M. Midwives‘ knowledge of, attitudes towards and experiences of caring for women with intellectual disability during pregnancy and childbirth: A cross-sectional study in Sweden. Midwifery, 2013, 29, 8, p. 950–955.

8. Lewis, S., Stenfert-Kroese, B. An investigation of nursing staff attitudes and emotional reactions towards patients with intellectual disability in a general hospital setting. J Applied Res Intellectual Disabilities, 2010, 23, 4, p. 355–365.

9. Llesellyn, G., Mcconnell, D., Bye, R. Perception of service needs by parents with intellectual disability, their significant others and their service workers. Res Developmental Disabilities, 1998, 19, 3, p. 245–260.

10. Mayes, R., Llewellyn, G., Mcconnell, D. Misconception: The experience of pregnancy for women with intellectual disabilities. Scand J Disability Res, 2006, 8, 2–3, p. 120–131.

11. Mcconnell, D., Mayes, R., Llewellyn, G. Pre-partum distress in women with intellectual disabilities. J Intellectual Developmental Disability, 2008, 33, 2, p. 177–183.

12. Walsh-Gallagher, D., McConkey, R., Sinclair, M., Clarke, R. Normalising birth for women with a disability: The challenges facing practitioners. Midwifery, 2013, 29, 4, p. 294–299.

13. Walsh-Gallagher, D., Sinclair, M., McConkey, R. The ambiguity of disabled women‘s experiences of pregnancy, childbirth and motherhood: A phenomenological understanding. Midwifery, 2012, 28, 2, p. 156–162.

14. Wilson, S., Mckenzie, K., Quayle, E., Murray, G. The postnatal support needs of mothers with an intellectual disability. Midwifery, 2013, 29, 6, p. 592–598.

15. Zákon č. 108/2006 Sb., o sociálních službách.

16. Zákon č. 373/2011 Sb., o specifických zdravotních službách.

17. Sdělení č. 10/2010 Sb. m. s., Úmluva o právech osob se zdravotním postižením.