Quality of Life in Patients with Lymphedema. First Results
Authors:
N. Vojáčková; Slavíková; Š.; D. Vaňousová; J. Hercogová
Authors place of work:
Dermatovenerologická klinika UK 2. LF a FN Na Bulovce, Praha
přednostka prof. MUDr. Jana Hercogová, CSc.
Published in the journal:
Čes-slov Derm, 84, 2009, No. 3, p. 134-137
Category:
Clinical and laboratory Research
Summary
Lymphedema is a chronic disease that impairs mobility, everyday activities, working and social position, psyche and last, but not least, the quality of life of the patient. Recently, the quality of life of the patient research is evolving. Methods of data collection and processing are not unified yet. Questionnaires methods are used most frequently. Various questionnaires were developed in different countries. In our study we used the modified Dermatology Life Quality Index. The questionnaire focussed on complaints caused by lymphedema is simple, so that can be filled-out in a short time. The evaluation is based on the final score ranging from 0 to 30. The higher score is the more serious impairment of the quality of life is present. More detailed analysis allows differentiation of impact on particular aspects of life. In this study 35 patients with primary lymphedema and 35 patients with secondary lymphedema were interviewed. Questionnaires were processed and the score of both interviewed groups was compared mutually and with the score of other dermatological conditions.
Key words:
quality of life – modified Dermatology Life Quality Index – lymphedema
Zdroje
1. BABU, BV., NAYAK, AN., RATH, K. et al. Use of the Dermatology Life Quality Index in filarial lymphoedema patients. Trans Royl Soc Trop Med and Hyg, 2006, 100, p. 258-263.
2. BASRA, MK., FENECH, R., GATT, RM. et al. The Dermatology Life Quality Index 1994-2007: a comprihensive review of validation data and clinical results. Br J Dermatol, 2008, 15, p. 169-180.
3. BASRA, MKA., SUE-HO, R., FINLAY, AY. The Family Dermatology Life Quality Index: measuring the secondary impact of skin disease. Br J Dermat, 2007, 156, p. 528-538.
4. BENCKO, V., HNILICOVÁ, H., KLEIN, O. Sustainable future and quality of life in medical education. Eur J Publ Health, 2005, 13, 3, p. 112-116.
5. FINLAY, AY. Quality of life measurement in dermatology: A practical guide. Br J Dermatol, 1997, 136, p. 305-314.
6. FINLAY, AY. KHAN, GK. Dermatology Life Quality Index: A simple practical measure for routine clinical use. Clin Exp Dermatol, 1994, 19, p. 210-216.
7. FRANKS, JP., MOFFAT, CHJ., DOHERTY, DC. et al. Assesment of health–related quality of life in patients with lymphedema of the lower limb. Wound Rep Reg, 2006, 14, p. 100-118.
8. FRANKS, P., MOFFATT, C., CONNOLLY, M. et al. Quality of life in a randomised trial in venous leg ulceration. Phlebology, 1999, 14, p. 95-99.
9. HALIOUA, B., BEUMONT, M. Quality of life in dermatology. Int J Fermat, 2000, 39, p. 801-806.
10. HARLOW, D., POYNER, T., FINLAY AY. Impaired quality of life in adults with skin disease in primary care. Br J Dermat, 2000, 143, p. 979-982.
11. HONGBO, Y., THOMAS, CL., HARRISON, MA. et al. Translating the science of quality of life into practice: what do dermatology Life Quality Index scores mean? JID, 2005, 125, p. 659-664.
12. HYLAND, M., LEY, A., THOMSON, B. Quality of life of leg ulcer patients: Questionnaire and preliminary findings. J Wound Care, 1994, 3, p. 294-298.
13. HNILICOVÁ, H., BENCKO, V. Kvalita života – vymezení pojmu a jeho význam pro medicínu a zdravotnictví. Prakt Lék, 2005, 85, 11, p. 656-660.
14. CHANDRASENA, TGAN., PREMARATNA, R., MUTHUGALA, MARV. et al. Modified Dermatology Life Quality Index as a measure of quality of life in patients with filarial lymphoedema. Trans Royl Soc Trop Med and Hyg, 2007, 101, p. 245-249.
15. LE CLEACH, L., CHASSANY, O., LEVY, A. et al. Poor Reporting of Quality of Life Outcomes in Dermatology Randomized Controlled Clinical Trials. Dermatology, 2008, 216, p. 46-55.
16. LEWIS, V., FINLAY, AY. 10 years experience of the Dermatology life quality index. J Invest Dermatol Symp Proc, 2004, 9, p. 169-180.
17. MC PHERSON, T. Impact on the quality of life of lymphedema patients following introduction of a hygiene and skin care regimen in a Guayanesse community endemic for lymphatic filariasis. A preliminary clinical intervention study. Filaria J, 2003, 2, 1.
18. McWAYNE, J., HEINEY, SP. Psychologic and social sequelae of secondary lymphedema. Cancer, 2005, 104, p. 457-466.
19. NĚMCOVÁ, A. Kvalita života pacientů s psoriázou. Ref výběr, 2008, p. 13-18.
20. PEREIRA DE GODOY, JM., BRAILE, DM., GODOY, MF. et al. Quality of life and peripheral lymphedema. Lymphology, 2002, 35, p. 72-75
21. SITZIA, J., SOBRIDO, L. Measurment of health related quality of life of patients receiving conservative treatment for limb lymphoedema using Nottingham Health Profile. Qual Life Res, 1997, 6, p. 373-83.
22. SMITH, J., GUEST, M., GREENHALGH, R., et al. Measuring the quality of life in patients with venous ulcers. J Vasc Surg, 2000, 31, p. 642-649.
23. WEISS, JM., SPRAY, BJ. The effect of complete decongestive therapy on the quality of life of patients with peripheral lymphedema. Lymphology, 2002, 35, p. 46-58.
Štítky
Dermatology & STDs Paediatric dermatology & STDsČlánok vyšiel v časopise
Czech-Slovak Dermatology
2009 Číslo 3
Najčítanejšie v tomto čísle
- Lymphedema
- Segmental Neurofibromatosis
- Onychomycoses Caused by Onychocola canadensis in the Slovak Republic
- Quality of Life in Patients with Lymphedema. First Results