Personal dignity of a patient with multiple sclerosis: interpretative phenomenological analysis

Česká verzia

Authors: J. Čáp ¹; K. Žiaková ¹; E. Gurková ²; R. Kurucová ¹; J. Grossmann ³
Authors place of work: Univerzita Komenského v Bratislave, Jesseniova lekárska fakulta v Martine, Ústav ošetrovateľstva, Vedúca ústavu: prof. Mgr. Katarína Žiaková, PhD. ¹; Univerzita Palackého v Olomouci, Fakulta zdravotnických věd, Ústav ošetřovatelství, Přednosta: Mgr. Zdeňka Mikšová, Ph. D. ²; Univerzitná nemocnica v Martine, Neurologická klinika, Prednosta: prof. MUDr. Egon Kurča, PhD., FESO ³
Published in the journal: Prakt. Lék. 2019; 99(1): 21-27
Category: Of different specialties

Summary

Objectives:

Find out how the patient with multiple sclerosis thinks about her personal dignity and impact of illness on this phenomenon.

Method:

The study has design of a pilot phenomenological interpretive case study. A semi-structured interview was used to collect empirical data which were analysed by interpretative phenomenological analysis (IPA).

Participant:

Adela, 53-year-old woman with a relapse-remitting form of multiple sclerosis participated in the study. Patient´s name has been changed.

Results:

Eight main themes describing patient’s experience with personal dignity has been identified: To be able to do what I want – everyday life. The diagnosis; it is crucial to accept and get used to it gradually – acceptance and adjustment. You are disabled and there isn’t any good for you – life without perspective labelled MS. Hospitalization (discomfort examinations, small rooms, bathrooms; overbearing roommate patients) – loss of privacy. Weak body to perform daily routines – difficulty with mobility. Help with daily activities – loss of independence. Health care professionals, great service – information and support. Patient’s dignity has been undermined by the disease and its symptoms, loss of normal life and independence (autonomy), loss of identity, confrontation with other people, and limitation of privacy during hospitalization. On the contrary, supportive agents for the preservation of her personal dignity were as follows: health care professionals, information provided by them and assistance, as well as own acceptance of the disease.

Conclusion:

The analysis of the case study shows that MS has had a significant impact on the sense of the patient's personal dignity. From the point of view of understanding the patient perspective, it is necessary to carry out qualitative research that would describe and interpret their life experience with their own dignity.

Keywords:

dignity – multiple sclerosis – case study – interpretative phenomenological analysis

Zdroje

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