Parkinson’s disease and its impact on dignity of patient: case study using interpretative phenomenological analysis

Česká verzia

Authors: M. Tomagová; J. Němcová; I. Bóriková
Authors place of work: Vedúca ústavu: prof. Mgr. Katarína Žiaková, PhD. ; Jesseniova lekárska fakulta v Martine ; Ústav ošetrovateľstva ; Univerzita Komenského v Bratislave
Published in the journal: Prakt. Lék. 2020; 100(3): 149-154
Category: Case Report

Summary

Aim: The aim of the qualitative case study is to describe the impact of Parkinson’s disease on the patient’s dignity.

Participant and methods: 65 years old patient, data collection conducted by semi-structured in-depth interview. Interpretative phenomenological analysis using Atlas.ti 8.0 software was used for qualitative analysis.

Results: We identified five themes representing the patient’s life experience in the context of her dignity: Acceptance of disease vs disease as a curse; Deep brain stimulation – joy vs disappointment; Physical limitations vs the need to remain active; Family – supporting vs hyper protective attitude; Health care – „I am not anyone“. The patient’s dignity was influenced mainly by the gradual reduction of autonomy due to the symptomatology of the disease and also by the hyper protective attitude of the family. She also had the experience of disrespecting her personality and autonomy in providing healthcare, which had an impact on her dignity.

Conclusion: Our results indicate the individual life experience of a patient with Parkinson’s disease and an analysis of this experience suggests that the disease affects the survival of dignity. Understanding the individual life experience of patients with chronic, progressive disease will help healthcare professionals respect individual needs, thus promoting and maintaining dignity.

Keywords:

Parkinson’s disease – dignity – qualitative case study – interpretative phenomenological analysis

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