#PAGE_PARAMS# #ADS_HEAD_SCRIPTS# #MICRODATA#

Diagnostics and intervention in healthy children whose brother or sisters are seriously ill


Authors: J. Mareš
Authors place of work: Ústav sociálního lékařství, Lékařská fakulta UK, Hradec Králové přednosta doc. MUDr. S. Býma, CSc.
Published in the journal: Čes-slov Pediat 2013; 68 (4): 266-277.
Category: Review

Summary

The establishment of severe diagnosis and exacting therapy of a severe or even life threatening disease is a stressful condition for the whole family including the healthy brothers and sisters. Newly diagnosed cases of severe disease in children and adolescents are concurrently on the increase. Physicians, nurses and clinical psychologists devote themselves to the child patient and his or her parents, whereas the healthy brother or sister is kept aside, there is not enough time for them. The worldwide research indicate that if such situation last long, which is common condition, the healthy individual get the problems internalized and his or her quality of life deteriorates.

This review summarizes present knowledge about psychical, behavioral and social problems of these healthy siblings. The authors review available psychodiagnostic tools, generic as well as specific. The way how physicians and nurses can intervene in children and adolescents, whose sibling undergoes an oncologic disease is indicated

Key words:
serious pediatric disease, ill child, ill adolescent, healthy siblings, family system, psychic problems, behavioral problems, social problems, diagnostics, assessment, intervention


Zdroje

1. WHO Europe: European Hospital Morbidity Database – trends 1999–2011.

2. McKeever P. Siblings of Chronically Ill Children: A literature review with implications for research and practice. Amer J Orthopsychiatry 1983; 53: 209–218.

3. Kárová Š, Blatný M, Bendová M. Psychosociální potřeby zdravých sourozenců onkologicky nemocných dětí aneb „zapomenuté děti“. Československá psychologie 2009; 2: 149–157.

4. Štěpánová M, Blatný M. Život se sourozencem s mentálním postižením: kritické momenty, zdroje zvládání a osobní růst. Československá psychologie 2009; 3: 241–260.

5. Gerak L, Campbell N, Mares M, et al. The Invisible Child: Understanding the Experiences of Siblings in Context of Family Illness. Akron: Akron Children’s Hospital, 2011.

6. Kárová Š, Blatný M, Jelínek M. Sourozenci onkologicky nemocných dětí. subjektivně vnímané změny v životě a kvalita jejich života 6 měsíců po stanovení diagnózy nemocnému sourozenci. Československá psychologie 2013; 56: 1 – 28, v tisku.

7. New M. Caring for siblings of seriously ill children, 2012. Dostupné na: http://www.childrensdayton.org/cms/kidshealth/06eb27247851f9e1/index.html.

8. Mesman GR, Kuo DZ, Carroll JL. The impact of technology dependence on children and their families. J Pediatr Health Care 2013; Jun 27 (v tisku).

9. Williams PD. Sibling and pediatric chronic illness: A review of literature. Int J Nurs Stud 1997; 34: 312–323.

10. Mareš J. Posttraumatický rozvoj člověka. Praha: Grada Publishing, 2012.

11. Sharpe D, Rossiter L. Siblings of children with a chronic illness: A meta-analysis. J Pediatr Psych 2002; 8: 699–710.

12. Vermaes IP, van Susante AM, van Bakel HJ. Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. J Pediatr Psych 2012; 2: 166–184.

13. Van Dongen-Melman JE. Surviving Childhood Cancer: All‘s Well that Ends Well!? Werkhoven: Vereniging Ouders, Kinderen en Kanker, 1997.

14. Labay LE, Walco GA. Brief report: Empathy and psychological adjustment in siblings of children with cancer. J Pediatr Psych 2004; 4: 309–314.

15. Patterson JM, Garwick AW. Levels of meaning in family stress theory. Fam Process 1994; 3: 287–304.

16. Newcom SS. Siblings of Chronically Ill Children (Doctoral dissertation). University of Arizona, College of Nursing, 2004.

17. Alderfer MA, Hodges JA. Supporting siblings of children with cancer: A need for family-school partnerships. School Ment Health 2010; 2: 72–81.

18. Demaray MK, Malecki CK. Critical levels of perceived social support associated with student adjustment. School Psychology Quarterly 2002; 17: 213–241.

19. Stewart D, Sun J. How can build resilience in primary school aged children? The importance of social support from adults and peers in family, school and community settings. Asia-Pac J Public Health 2004; 16: S37–S41.

20. Di Perna JC, Elliott SN. Development and validation of the academic competence evaluation scales. J Psychoeduc Assess 1999; 17: 207–225.

21. Houtzager BA, Grootenhuis MA, Caron HN, et al. Sibling self-report, parent proxies, and quality of life: The importance of multiple informants for siblings of a critical ill child. Pediatr Hematol Oncol 2005; 1: 25–40.

22. Nolbris M, Enskär K, Hellström AL. Experience of siblings of children treated for cancer. Eur J Oncol Nurs 2007; 11: 106–112.

23. Roberson SG. The Experience of Social Support at a Camp for Siblings of Children with Cancer (Doctoral dissertation). Texas A&M University Press, 2008, 1–106.

24. Foa E, Johnson K, Feeny N, et al. The child PTSD symptom scale: A preliminary examination of its psychometrics properties. J Clin Child Psychol 2001; 3: 376–384.

25. Reynolds CR, Richmond BO. Revised Children‘s Manifest Anxiety Scale. RCMAS Manual. Los Angeles: Western Psychological Services, 1985.

26. Kovacs M. The Children’s Depression Inventory (CDI) Manual. New York: Multi-Health Systems, 1992.

27. Achenbach TM, Rescorla LA. Manual for the ASEBA School-Age Forms and Profiles. Burlington: University of Vermont, Research Center for Children, Youth, and Families, 2001.

28. Mareš J, Ježek S, Tomášek F. CASSS-CZ: The Czech version of the social support questionnaire for children and adolescents. New Educ Rev 2005; 1: 11–25.

29. Vogels T, Verrips GH, Verloove-Vanhorick SP, et al. Measuring health-related quality of life in children: The development of TACQOL parent form. Qual Life Res 1998; 7: 457–465.

30. Goldbeck L, Braun R. LQ-KID – Ein computergestütztes Verfahren zur Erfassung der Lebensqualität chronisch kranker Kinder und Jugendlicher. Prävent Rehab 2003; 15: 117–126.

31. Ravens-Sieberer U, Auquier P, Erhart M, et al. The KIDSCREEN-27 Quality of Life Measure for Children and Adolescents: Psychometric results from a cross-cultural survey in 13 European countries. Qual Life Res 2007; 16: 1347–1356.

32. Carpenter PJ, Sahler OJ. Siblings perception and adaptation to childhood cancer. Conceptual and methodological considerations. In: Johnson JH, Johnson SB (eds). Advances in Child Health Psychology. Gainesville: University of Florida Press, 1991: 196–205.

33. Volling BL, Blandon AY. Positive Indicators of Sibling Relationship Duality: Psychometric Analyses of The Sibling Inventory of Behavior (SIB). Indicators of Positive Development Conference. Washington, March, 2003, 39 p.

34. Houtzager BA, Grootenhuis MA, Hoestra JE, et al. Psychosocial functioning in siblings of pediatric cancer patients one to six months after diagnosis. Eur J Cancer 2003; 39: 1423–1432.

35. Prchal A, Landolt MA. Psychological interventions with siblings of pediatric cancer patients: A systematic review. Psychooncology 2009; 18: 1241–1251.

36. Gursky B. The effect of educational intervention with siblings of hospitalized children. J Dev Behav Pediatr 2007; 28(5): 1–8.

37. Besier T, Hölling H, Schlack R, et al. Impact of a family-oriented rehabilitation programme on behavioural and emotional problems in healthy siblings of chronically ill children. Child Care Health Dev 2010; 5: 686–695.

38. Prchal A, Graf A, Bergstrasser E, et al. A two-session psychological intervention for siblings of pediatric cancer patients: A randomized controlled pilot trials. Child Adolesc Psychiatry Ment Health 2012; 3: 1–9.

39. Angiolillo AL, Jankovic M, Haupt,R, et al. Appreciation and the disciplinary management of the psychosocial impact of leukemia on children and their families. In: Reaman GH, Smith FO (eds). Childhood Leukemia. Berlin: Springer, 2011: 285–301.

Štítky
Neonatology Paediatrics General practitioner for children and adolescents

Článok vyšiel v časopise

Czech-Slovak Pediatrics

Číslo 4

2013 Číslo 4
Najčítanejšie tento týždeň
Najčítanejšie v tomto čísle
Prihlásenie
Zabudnuté heslo

Zadajte e-mailovú adresu, s ktorou ste vytvárali účet. Budú Vám na ňu zasielané informácie k nastaveniu nového hesla.

Prihlásenie

Nemáte účet?  Registrujte sa

#ADS_BOTTOM_SCRIPTS#