The needs of parents of children with cerebral palsy
Authors:
J. Kučová; L. Sikorová
Authors place of work:
Ostravská univerzita v Ostravě Lékařská fakulta, Děkan: doc. MUDr. Arnošt Martínek, CSc.
Published in the journal:
Prakt. Lék. 2012; 92(9): 509-512
Category:
Of different specialties
Summary
Introduction:
Family is one of the most important elements in the treatment of a handicapped child. However, the quality of interaction between the family and the child may be significantly affected by unfulfilled needs of the parents. Knowledge of the needs of a family with a handicapped child enables experts to provide comprehensive care focused not only on the child but also on the family in accordance with the current trend in nursing care – Family Centered Care. The aim of the paper was to summarize available information about the needs of parents of children with infantile cerebral palsy (ICP).
Methodology:
Research focused on the needs of parents of children with ICP were searched by means of Boolean operators in professional licensed databases and in freely accessible databases. The criteria for the selection of papers were: studies published between 2000 and 2012, studies published in English, full text of the published research, age of children with ICP between 1 and 7 years, and the quantitative or combined research approach. A total of 40 research papers were analysed.
Findings:
Nine areas of parents’ needs were identified: health support, support from others, family relationships, services, information and communication, disease management, funds, time management and family adaptation.
Key words:
infantile cerebral palsy; parenting; needs; psychosocial well-being; disabilities; parental stress
Zdroje
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