The Use of the QUALID Scale for Evaluating the Quality of Life in Patients with Late‑stage Dementia in the Czech Republic
Authors:
R. Bužgová 1; M. Stolička 1,2
Authors place of work:
Ústav ošetřovatelství a porodní asistence, LF OU v Ostravě
1; Léčebna pro dlouhodobě nemocné Klokočov, FN Ostrava
2
Published in the journal:
Cesk Slov Neurol N 2015; 78/111(3): 317-322
Category:
Original Paper
Summary
Aim:
The aim of this study was to examine psychometric properties of the Czech version of the QUALID scale for evaluating the QoL in patients with severe dementia, to assess suitability of its use in the Czech Republic and to establish whether there is a change in the QoL during hospitalization.
Sample and methods:
The sample consisted of 184 patients with severe dementia who were hospitalized at the University Hospital Ostrava. The QUALID was translated into Czech using standard methodology. To evaluate psychometric properties of the questionnaire, reliability, namely internal consistency (Cronbach´s alpha) and inter-rater reliability (Cohen´s kappa, ICC), was assessed. Construct validity was verified using the Spearman correlation coefficient for the total QUALID score and its domains and for SM-EOLD items.
Results:
Good internal consistency of the QUALID (α = 0.820) was proved using Cronbach´s alpha. Inter-rater reliability was found to be high (ICC = 0.8317; p < 0.01). Assumed mean dependency between QUALID and SM-EOLD (r > 0.3) was found for the discomfort domain and for the QUALID total score. Multivariate regression analysis found a correlation between lower QoL and pain, skin disorder, anxiety, fear and concern. During hospitalization, QoL was significantly improved in patients with severe dementia (p < 0.01).
Conclusions:
the Czech version of the QUALID was found to have good reliability as well as satisfactory construct validity. The scale is suitable for the use in the Czech Republic. A correlation was found between burdensome symptoms and lower QoL.
Key words:
dementia – quality of life – reliability – validity
The authors declare they have no potential conflicts of interest concerning drugs, products, or services used in the study.
The Editorial Board declares that the manuscript met the ICMJE “uniform requirements” for biomedical papers.
Zdroje
1. Barca ML, Engerdal K, Laks J, Selbak G. Quality of life among elderly patients with dementia in institutions. Dement Geriatr Cogn Disord 2011; 31(6): 435– 442. doi: 10.1159/ 000328969.
2. Olmo JG, Pujol XP, Pousa SL, Weiner MF, Estrada AT, Juvinya D et al. Cross‑ cultural adaptation and psychometric validation of a Spanish version of the Quality of Life in Late‑stage Dementia Scale. Qual Life Res 2010; 19(3): 445– 453. doi: 10.1007/ s11136‑ 010‑ 9594‑ 8.
3. Wija P. Jaká je kapacita a struktura dlouhodobé péče v České republice? Geri a Gero 2013; 3(2): 122– 127.
4. Holmerová I, Baláčová N, Baumanová M, Hájková L,Hradcová D, Hýblová P et al. Strategie České alzheimerovské společnosti P‑ PA‑ IA. Geri a Gero 2013; 3(2): 158– 164.
5. De Vreese LP, Uberti M, Mantesso U, De Bastiani E, Weger E, Marangoni AC et al. Measuring quality of life in intellectually disabled persons with dementia with the italian version of the quality of life in late‑stage dementia (QUALID) scale. J Alzheimers Dis 2012; 2(1): e104.
6. Whitehouse PJ, Orgogozo JM, Becker RE, Gauthier S, Pontecorvo M, Erzigkeit H et al. Quality‑ of‑life assessment in dementia drug development. Position paper from the International Working group on Harmonization of Dementia Drug Guidelines. Alzheimer Dis Assoc Disord 1997; 11 (Suppl 3): 56– 60.
7. Lawton MP. Quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord 1994; 8 (Suppl 3): 138– 150.
8. Lužný J. Kvalita života u pacientů s demencí. Cesk Slov Neurol N 2013; 76/ 109(1): 90– 95.
9. Smith SC, Lamping DL, Banerjee S, Harwood R, Foley B,Smith P et al. Measurement of health‑related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technol Assess 2005; 9(10): 1– 93.
10. Weiner MF, Martin‑Cook K, Svetlik DA, Saine K, Foster B, Fontaine CS. The quality of life in latestage dementia (QUALID) scale. J Am Med Dir Assoc 2000; 1(3): 114– 116.
11. Garre‑Olmo J, Planas‑ Pujol X, López‑ Pousa S, Weiner MF, Turon‑ Estraada A, Juvinia D et al. Cross‑ cultural adaptation and psychometric validation of a Spanish version of the quality of life in late‑ stage dementia scale. Qual Life Res 2010; 19(3): 445– 453. doi: 10.1007/ s11136‑ 010‑ 9594‑ 8.
12. Terwee CB, Bot SD, de Boer R, van der Windt D, Knol DL,Dekker J et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clinic Epidemiol 2007; 60(1): 34– 42.
13. Ware JE jr, Gandek B. Methods for testing data quality, scaling assumptions, and reliability: the IQOLA Project approach. International Quality of Life Assessment. J Clin Epidemiol 1998; 51(11): 945– 952.
14. Volicer L, Hurley AC, Blasi ZV. Scales for evaluation of End‑od‑ Life Care in Dementia. Alzheimer Dis Assoc Disord 2001; 15(4): 194– 200.
15. Hendrick SA, Smalbrugge M, Hertogh CMP, van der Steen JT. Dying with dementia: symptoms, treatment, and quaity of life in the last week of life. J Pain Symptom Manage 2014; 47(4): 710– 720. doi: 10.1016/ j.jpainsymman.2013.05.015.
16. Kiely DK, Volicer L, Teno J, Jones RN, Prigerson HG, Mitchell S. The validity and reliability of scales for the evaluation of end‑of‑life care in advanced dementia. Alzheimer Dis Assoc Disord 2006; 20(3): 176– 181.
Štítky
Paediatric neurology Neurosurgery NeurologyČlánok vyšiel v časopise
Czech and Slovak Neurology and Neurosurgery
2015 Číslo 3
- Advances in the Treatment of Myasthenia Gravis on the Horizon
- Memantine Eases Daily Life for Patients and Caregivers
- Spasmolytic Effect of Metamizole
Najčítanejšie v tomto čísle
- Addenbrooke’s Cognitive Examination – Approximate Normal Values for the Czech Population
- Spinal Shock – from Pathophysiology to Clinical Manifestation
- Diagnosis of Epileptic Seizures
- Air Embolism of the Brain – a Case Report