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General practitioners (GPs) and their role in supporting informal carers for elderly and disabled people from the informal carers’ perspective


Authors: K. Dobiášová 1,2;  M. Kotrusová 1;  J. Hošťálková 1
Authors place of work: Univerzita Karlova v Praze, Fakulta sociálních věd, Institut sociologických studií, Ředitel: Mgr. Martin Hájek, Ph. D. 1;  Univerzita Karlova v Praze, 1. LF, Ústav veřejného zdravotnictví a medicínského práva, Přednostka: MUDr. Mgr. Jolana Těšinová 2
Published in the journal: Prakt. Lék. 2015; 95(4): 161-165
Category: Of different specialties

Summary

The article deals with problems of informal (family) carers for elderly and disabled people in the context of foreign researchers and best policy practices. It also pays a great attention to the role of GPs in providing a support to family carers in the long-term care system in the Czech Republic. We have come to our conclusions on the basis of desk-research and face-to face interviews with 30 family carers for frail elderly and disabled children. Caring for dependent family members in their homes is an extremely difficult task in terms of mental and physical health of carers. They find themselves very often in an unfavourable family situation because they have reduced or even have given up their employment as a result of care provision and could therefore face serious income problems. Especially if the informal carers themselves are older people, their financial situation could be difficult and they could face social exclusion. Family carers expect from GPs an adequate health care and provision of information on available health and social services, social benefits and specialised medical aids. They also wish to be partners to GPs in the care provision and appreciate GPs open communication and education in terms of care. Our research also showed that the present primary care system in the Czech Republic coupled with lack of GPs contributes to an unequal provision of health and social services. The key role of GPs as mediators between formal and informal care as well as between health care and social care is still not adequately fulfilled.

Keywords:
general practitioner – primary care – informal care – long-term care system Czech Republic – family carers


Zdroje

1. ÚZIS. Aktuální informace č. 16 [online] Praha: UZIS 2014 [cit. 2014 -11-20]. Dostupný z: http://www.uzis.cz/rychle-informace/aktualni-informace.

2. Bareš P, Dobiášová K, Geissler H, a kol. Analýza potřeb a nabídky sociálních služeb na území hlavního města Prahy. Závěrečná zpráva projektu. CESES FSV UK 2012 [online] Portál pro sociální oblast města Prahy [citováno 2013-08-23] Dostupný z: http://socialni.praha.eu/public/41/de/fe/1371068_246848_pss_zav_zprava.pdf.

3. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3(2): 77–101.

4. Carduff E, Finucane A, Kendall M, et al. Understanding the barriers to identifying carers of people with advanced illness in primary care: triangulating three data sources. BMC Fam Pract 2014; 48(1): 1–10.

5. Carpentier N. Caregiver identity as a useful concept for understanding the linkage between formal and informal care systems: a case study. Sociology Mind 2012; 2(1): 41–49. [cit. 2014-09-23]. Dostupné z: http://www.scirp.org/journal/PaperDownload.aspx?DOI=10.4236/sm.2012.21005.

6. Colombo F, et al. Help wanted? Providing and paying for Long-Term Care [online]. OECD Health Policy Studies, OECD Publishing, 2011 [cit. 2013-08-20] Dostupný z: http://dx.doi.org/10.1787/9789264097759-en.

7. Essue BM, Jowsey T, Jeon YH, et al. Informal care and the self-management partnership: implications for Australian health policy and practice. Aus Health Rev, 2010, 34(4): 414–422.

8. Flick, U. An introduction to qualitative research. London: SAGE Publications 2009.

9. Harding R, Epiphaniou E, Hamilton D, et al. What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention. Support Care Cancer 2012; 20(9): 1975–1982.

10. Cherlin E, Fried T, Prigerson HG, et al. Communication between physicians and family caregivers about care at the end of life: When do discussions occur and what is said? J Palliat Med 2005; 8(6): 1176–1185.

11. INTERLINKS Project. Health systems and long-term care for older people in Europe – Modelling the INTERfaces and LINKS between prevention, rehabilitation, quality of services and informal care [on line]. 2011-10-14 [cit. 2014-10-20]. Dostupný z: http://interlinks.euro.centre.org/project.

12. Janečková H, Hnilicová H. Úvod do veřejného zdravotnictví. Praha: Portál 2009.

13. Jones R, Mackenzie A, Greenwood N, et al. General practitioners, primary care and support for carers in England: can training make a difference? Health Soc Care Community, 2012; 20(2): 128–136.

14. Kotrusová M, Dobiášová K, Hoštálková J. Role rodinných pečovatelů v systému sociální a zdravotní péče. Fórum sociální politiky 2013; 6: 10–20.

15. Lévesque L, Ducharme F, Caron C, et al. A partnership approach to service needs assessment with family caregivers of an aging relative living at home: A qualitative analysis of the experiences of caregivers and practitioners. Int J Nurs Stud 2010; 47(7): 876–887.

16. Mestheneos E, Triantafillou J. Supporting family carers of older people in Europe – the pan-European background. Hamburg: EUROFAMCARE-consortium 2005.

17. Ruppanner L, Bostean G. Who cares? Caregiver well-being in Europe. Eur Sociol Rev 2014; 30(5): 655–669.

18. Salin S, Kaunonen M, Åstedt-Kurki P. Nurses’ perceptions of their relationships with informal carers in institutional respite care for older people. Nurs Res Pract 2013; 1–9. Dostupné z: http://dx.doi.org/10.1155/2013/967084. [cit. 2015-03-26].

19. The Princess Royal Trust for Carers and Royal College of General Practitioners. Supporting Carers: An action guide for general practitioners and their teams [on line]. 2nd ed. London 2011 [cit. 2014-04-10]. Dostupný z: http://www.rcgp.org.uk/~/media/Files/CIRC/Carers/Carers-Action-Guide.ashx.

20. WHO. The world health report 2008: primary health care now more than ever [online]. Geneva: World Health Organization 2008 [cit. 2014 -11-20]. Dostupný z: http://www.who.int/whr/2008/en/.

21. Triantafillou J, Naiditch M, Repkova K, et al. Informal care in the long-term care system. European overview paper. [on line] Project Interlinks. Athesn/Vienna, 2010 [citováno 2013-07-23] Dostupný z: http://interlinks.euro.centre.org/sites/default/files/WP5_Overview_FINAL_04_11.pdf.

22. Ministerstvo zdravotnictví ČR. Vzdělávací program v oboru Všeobecné praktické lékařství. Věstník 2009_Částka 4 [online] [cit. 2014 -11-20]. Dostupný z: http://www.mzcr.cz/Odbornik/dokumenty/lekari_2406_1740_3.html.

23. Wiley S. Who cares for family and friends? Providing palliative care at home teams. Nursing monograph 1998 [online]. Dostupný z: http://www.clininfo.health.nsw.gov.au/hospolic/stvincents/stvin98/a2.html.gov.au/hospolic/stvincents/stvin98/a2.html [cit. 2014-10-30]

24. Yin, R. A. Case study research. Design and methods. California: Sage Publications 2014.

25. Poslanecká sněmovna Parlamentu ČR. Zákon č. 48/1997 Sb., o veřejném zdravotním pojištění. Dostupné z: http://portal.gov.cz/app/zakony/zakon.jsp?page=0&nr=48~2F1997&rpp=15#seznam.

Štítky
General practitioner for children and adolescents General practitioner for adults

Článok vyšiel v časopise

General Practitioner

Číslo 4

2015 Číslo 4
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