Quality of life in a young female patient after ischemic stroke: an interpretative phenomenological analysis

Česká verzia

Authors: Š. Šaňáková ¹; E. Gurková ¹; L. Machálková ¹; L. Mazalová ¹; D. Bartoníčková ¹; D. Šaňák ²
Authors place of work: Univerzita Palackého v Olomouci Fakulta zdravotnických věd, Ústav ošetřovatelství Přednostka: Mgr. Daniela Bartoníčková ¹; Fakultní nemocnice Olomouc, Neurologická klinika Přednosta: prof. MUDr. Petr Kaňovský, Ph. D. ²
Published in the journal: Prakt. Lék. 2023; 103(4): 202-207
Category: Case Report

Summary

Objective: To find out the life experiences of a patient after an ischemic stroke (IS) at a young age and what effect this disease had on the quality of her further life (Health Related Quality of Life, HRQoL).

Methodology: The pilot study had the characteristics of an interpretative phenomenological case study. Data collection was carried out through an in-depth semi-structured interview focusing on the areas of the investigated phenomenon. The interview transcript was analysed based on interpretative phenomenological analysis (IPA).

Participant: 45-year-old woman, two years after IS, self-employed bar operator before the illness. As a result of the lingering consequences after IS (fatigue, expressive phatic disorder, slight right arm paresis and depression), she is on disability pension.

Results: A total of 8 themes were identified that describe the patient's experience with the consequences of IS. We characterized these themes as: It was beyond me – timely and adequate provision of health care; I was nobody – the consequences of severe aphasia; I was lively, cheerful, wild – loss of integrity; Fatigue – change in daily rhythm; I was everywhere, now always at home – social isolation; I have already learned to walk and talk – the benefit of intensive RHB and speech therapy care; Successes in small steps – a gradual return to normal life; Partner and family as help, support and motivation – a new dimension of relationships.

Conclusion: Despite the significant improvement of the clinical condition after IS, its impact on the quality of life can be very significant. In the case of the referred young patient, her recovery took many months to years despite intensive rehabilitation, speech therapy and psychological support. Fatigue, depressive mood, abulia, social isolation persist for a long time. Adequate care for these patients requires a highly individualized approach by multidisciplinary teams.

Keywords:

stroke – Quality of life – interpretative phenomenological analysis – case study

Zdroje

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