Data Sharing in a Humanitarian Organization: The Experience of Médecins Sans Frontières

article has not abstract

Vyšlo v časopise: Data Sharing in a Humanitarian Organization: The Experience of Médecins Sans Frontières. PLoS Med 10(12): e32767. doi:10.1371/journal.pmed.1001562
Kategorie: Policy Forum
prolekare.web.journal.doi_sk: https://doi.org/10.1371/journal.pmed.1001562

Souhrn

article has not abstract

Zdroje

1. Murray-Rust P, Neylon C, Pollock R, Wilbanks J (2010) Panton principles: principles for open data in science. Available: http://pantonprinciples.org. Accessed 16 April 2013.

2. Wellcome Trust (2011) Sharing research data to improve public health: full joint statement by funders of health research. Available: http://www.wellcome.ac.uk/About-us/Policy/Spotlight-issues/Data-sharing/Public-health-and-epidemiology/WTDV030690.htm. Accessed 16 April 2013.

3. Dryad (2013) Dryad [data repository]. Available: http://datadryad.org/. Accessed 16 April 2013.

4. PLOS (2013) PLOS editorial and publishing policies. Available: http://www.plosone.org/static/policies.action#sharing. Accessed 16 April 2013.

5. BioMed Central (2010) BioMed Central's position statement on open data. Available: http://blogs.biomedcentral.com/bmcblog/files/2010/09/opendatastatementdraft.pdf. Accessed 16 April 2013.

6. HrynaszkiewiczI (2010) A call for BMC Research Notes contributions promoting best practice in data standardization, sharing and publication. BMC Res Notes 3: 235 Available: http://www.biomedcentral.com/1756-0500/3/235/. Accessed 16 April 2013.

7. Nature Publishing Group (2012) Availability of data and materials. Available: http://www.nature.com/authors/policies/availability.html. Accessed 16 April 2013.

8. SavageCJ, VickersAJ (2009) Empirical study of data sharing by authors publishing in PLoS journals. PLoS ONE 4: e7078 doi:10.1371/journal.pone.0007078

9. GodleeF (2012) Measure your team's performance, and publish the results. BMJ 344: e4590 Available: http://www.bmj.com/content/345/bmj.e4590. Accessed 16 April 2013.

10. Nyang'waB-T, BrigdenG, du CrosP, ShanksL (2013) Resistance to second-line drugs in multidrug-resistant tuberculosis. Lancet 381: 625.

11. World Health Organization (2003) Consensus document on the epidemiology of severe acute respiratory syndrome (SARS). Geneva: World Health Organization. Available: http://apps.who.int/iris/bitstream/10665/70863/1/WHO_CDS_CSR_GAR_2003.11_eng.pdf. Accessed 9 September 2013.

12. LangatP, PisartchikD, SilvaDS, BernardC, OlsenK, et al. (2011) Is there a duty to share? Ethics of sharing research data in the context of public health emergencies. Public Health Ethics 4: 4–11.

13. ZachariahR, FordN, DraguezB, YunO, ReidT (2010) Conducting operational research within a non governmental organization: the example of Médecins Sans Frontières. Int Health 2: 1–8 doi:10.1016/j.inhe.2009.12.008

14. BrownV, GuerinPJ, LegrosD, PaquetC, PécoulB, et al. (2008) Research in complex humanitarian emergencies: the Médecins Sans Frontières/Epicentre Experience. PLoS Med 54: e89 doi:10.1371/journal.pmed.0050089

15. SchopperD, UpshurR, MatthysF, SinghJA, BandewarSS, et al. (2009) Research ethics review in humanitarian contexts: the experience of the independent ethics review board of Médecins Sans Frontières. PLoS Med 6: e1000115 doi:10.1371/journal.pmed.1000115

16. Chapman M, Carrigan C, Clark B, Cope J, Groot K, et al.. (2013) A template for the development of policies for access to data or biological samples for research. London: National Cancer Research Institute. Available: http://www.ncin.org.uk/view?rid=250. Accessed 4 November 2013.

17. Wellcome Trust Sanger Institute (2010) Data sharing guidelines. Available: http://www.sanger.ac.uk/datasharing/assets/wtsi_datasharing_guidelines.pdf. Accessed 16 April 2013.

18. UK Data Archive (2012) Create and manage data: planning for sharing. How to share data Available: http://www.data-archive.ac.uk/create-manage/planning-for-sharing/how-to-share-data. Accessed 16 April 2013.

19. Hahnel M (2012) Ensuring persistence on figshare. Available: http://figshare.com/blog/Ensuring%20persistence%20on%20figshare/25. Accessed 16 April 2013.