Amyotrophic Lateral Sclerosis in a Palliative Hospice Care Setting – a Case Report
Authors:
M. Kala 1,2; Z. Mikšová 1
Authors place of work:
Ústav ošetřovatelství, Fakulta zdravotnických věd UP v Olomouci
1; Hospic na Svatém Kopečku
2
Published in the journal:
Cesk Slov Neurol N 2012; 75/108(5): 630-632
Category:
Case Report
Summary
The authors present a case of 41-year old male with amyotrophic lateral sclerosis who refused percutaneous endoscopic gastrostomy and mechanical ventilation and decided for palliative care in a hospice. The paper describes palliative therapeutic approach that reduces patient suffering and enables him to die peacefully sharing his last days with his family.
Key words:
amyotrophic lateral sclerosis – palliative care – hospice
Zdroje
1. Sláma O. Podkožní aplikace léků a tekutin v paliativní medicíně. Onkologie 2008; 2(4): 246–248.
2. Spataro R, Lo Re M, Piccoli T, Piccoli F, La Bella V. Cause and place of death in Italian patiens with amyotrophic lateral sclerosis. Acta Neurol Scand 2010; 122(3): 217–223.
3. Yang R, Huang R, Chen D, Song W, Zeng Y, Zhao B et al. Cause and places of death of patiens with amyotrophic lateral sclerosis in south-west China. Amyotroph Lateral Scler 2011; 12(3): 206–209.
4. Lo Coco D, Marchese S, Corrao S, Cettina Pesco M, La Bella V, Piccoli F et al. Development of chronic hypoventilation in amyotrophic lateral sclerosis patiens. Respir Med 2006; 100(6): 1028–1036.
5. Albert SM, Whitaker A, Rabkin JG, del Bene M, Tider O´Sullivan I, Mitsumoto H. Medical and supportive care among people with ALS in the months before death or tracheostomy. J Pain Symptom Manager 2009; 38(4): 546–553.
6. Bourke SC, Bullock RE, Williams TL, Shaw PJ, Gibson GJ. Noninvasive ventilation in ALS: indications and effect on quality of life. Neurology 2003; 61(2): 171–177.
7. Oliver D, Campbell C, Sloan R et al. End-of-life care and decision making in ALS/MND: A crosscultural study. Amyotroph Lateral Scler 2007; 8 (Suppl 1): 13–15.
8. LeBon B, Fisher S. Case report: Maintaining and withdrawing long-term invasive ventilation in a patient with MND/ALS in a home setting. Palliat Med 2011; 25(3): 262–265.
9. Spataro R, Ficano L, Piccoli F, La Bella V. Percutaneous endoscopic gastrostomy in amyotrophic lateral sclerosis: effect on survival. J Neurol Sci 2011; 304(1–2): 44–48.
10. Maessen M, Veldink JH, Onwuteaka-Philipsen BD, de Vries JM, Wokke JH, van der Wal G et al. Trends and determinants of end-of-life practices in ALS in the Netherlands. Neurology 2009; 73(12): 954–961.
11. Kűhnlein P, Kűbler A, Raubold S, Worrell M, Kurt A, Gdynia HJ et al. Palliative care and circumstances of dying in German ALS patients using non-invasive ventilation. Amyotroph Lateral Scler 2008; 9(2): 91–98.
12. Russell JA, Williams MA, Drogan O. Sedation for the imminently dying: survey results from the AAN Ethics Section. Neurology 2010; 74(16): 1303–1309.
13. Bede P, Oliver D, Stodart J, van den Berg L, Simmons Z, O Brannagáin D et al. Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives. J Neurol Neurosurg Psychiatry 2011; 82(4): 413–418.
14. Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN et al. Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group. Amyotroph Lateral Scler 2007; 8(4): 195–213.
15. Ridzoň P, Mazanec R. Paliativní péče u terminálních stavů chorob motorického neuronu (amyotrofické laterální sklerózy, progresivní bulbární paralýzy a progresivní svalové atrofie). Neurol prax 2010; 11(1): 25–28.
Štítky
Paediatric neurology Neurosurgery NeurologyČlánok vyšiel v časopise
Czech and Slovak Neurology and Neurosurgery
2012 Číslo 5
- Memantine Eases Daily Life for Patients and Caregivers
- Metamizole at a Glance and in Practice – Effective Non-Opioid Analgesic for All Ages
- Advances in the Treatment of Myasthenia Gravis on the Horizon
- Metamizole vs. Tramadol in Postoperative Analgesia
Najčítanejšie v tomto čísle
- Motor Stereotypies in Childhood – Case Reports
- Emotional Memory – Pathophysiology and Clinical Associations
- Neurological Complications Associated with Assisted Reproductive Technology – a Case Report
- Endovascular Therapy of Intracranial Aneurysms – Methods, Indications, Complications