#PAGE_PARAMS# #ADS_HEAD_SCRIPTS# #MICRODATA#

Amyotrophic Lateral Sclerosis in a Palliative Hospice Care Setting – a Case Report


Authors: M. Kala 1,2;  Z. Mikšová 1
Authors place of work: Ústav ošetřovatelství, Fakulta zdravotnických věd UP v Olomouci 1;  Hospic na Svatém Kopečku 2
Published in the journal: Cesk Slov Neurol N 2012; 75/108(5): 630-632
Category: Case Report

Summary

The authors present a case of 41-year old male with amyotrophic lateral sclerosis who refused percutaneous endoscopic gastrostomy and mechanical ventilation and decided for palliative care in a hospice. The paper describes palliative therapeutic approach that reduces patient suffering and enables him to die peacefully sharing his last days with his family.

Key words:
amyotrophic lateral sclerosis – palliative care – hospice


Zdroje

1. Sláma O. Podkožní aplikace léků a tekutin v paliativní medicíně. Onkologie 2008; 2(4): 246–248.

2. Spataro R, Lo Re M, Piccoli T, Piccoli F, La Bella V. Cause and place of death in Italian patiens with amyotrophic lateral sclerosis. Acta Neurol Scand 2010; 122(3): 217–223.

3. Yang R, Huang R, Chen D, Song W, Zeng Y, Zhao B et al. Cause and places of death of patiens with amyotrophic lateral sclerosis in south-west China. Amyotroph Lateral Scler 2011; 12(3): 206–209.

4. Lo Coco D, Marchese S, Corrao S, Cettina Pesco M, La Bella V, Piccoli F et al. Development of chronic hypoventilation in amyotrophic lateral sclerosis patiens. Respir Med 2006; 100(6): 1028–1036.

5. Albert SM, Whitaker A, Rabkin JG, del Bene M, Tider O´Sullivan I, Mitsumoto H. Medical and supportive care among people with ALS in the months before death or tracheostomy. J Pain Symptom Manager 2009; 38(4): 546–553.

6. Bourke SC, Bullock RE, Williams TL, Shaw PJ, Gibson GJ. Noninvasive ventilation in ALS: indications and effect on quality of life. Neurology 2003; 61(2): 171–177.

7. Oliver D, Campbell C, Sloan R et al. End-of-life care and decision making in ALS/MND: A crosscultural study. Amyotroph Lateral Scler 2007; 8 (Suppl 1): 13–15.

8. LeBon B, Fisher S. Case report: Maintaining and withdrawing long-term invasive ventilation in a patient with MND/ALS in a home setting. Palliat Med 2011; 25(3): 262–265.

9. Spataro R, Ficano L, Piccoli F, La Bella V. Percutaneous endoscopic gastrostomy in amyotrophic lateral sclerosis: effect on survival. J Neurol Sci 2011; 304(1–2): 44–48.

10. Maessen M, Veldink JH, Onwuteaka-Philipsen BD, de Vries JM, Wokke JH, van der Wal G et al. Trends and determinants of end-of-life practices in ALS in the Netherlands. Neurology 2009; 73(12): 954–961.

11. Kűhnlein P, Kűbler A, Raubold S, Worrell M, Kurt A, Gdynia HJ et al. Palliative care and circumstances of dying in German ALS patients using non-invasive ventilation. Amyotroph Lateral Scler 2008; 9(2): 91–98.

12. Russell JA, Williams MA, Drogan O. Sedation for the imminently dying: survey results from the AAN Ethics Section. Neurology 2010; 74(16): 1303–1309.

13. Bede P, Oliver D, Stodart J, van den Berg L, Simmons Z, O Brannagáin D et al. Palliative care in amyotrophic lateral sclerosis: a review of current interna­tional guidelines and initiatives. J Neurol Neurosurg Psychiatry 2011; 82(4): 413–418.

14. Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN et al. Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group. Amyotroph Lateral Scler 2007; 8(4): 195–213.

15. Ridzoň P, Mazanec R. Paliativní péče u terminálních stavů chorob motorického neuronu (amyotrofické laterální sklerózy, progresivní bulbární paralýzy a progresivní svalové atrofie). Neurol prax 2010; 11(1): 25–28.

Štítky
Paediatric neurology Neurosurgery Neurology

Článok vyšiel v časopise

Czech and Slovak Neurology and Neurosurgery

Číslo 5

2012 Číslo 5
Najčítanejšie tento týždeň
Najčítanejšie v tomto čísle
Prihlásenie
Zabudnuté heslo

Zadajte e-mailovú adresu, s ktorou ste vytvárali účet. Budú Vám na ňu zasielané informácie k nastaveniu nového hesla.

Prihlásenie

Nemáte účet?  Registrujte sa

#ADS_BOTTOM_SCRIPTS#