Global services and support for children with developmental delays and disabilities: Bridging research and policy gaps
Pamela Collins and colleagues explain the research and policy approaches needed globally to ensure children with developmental delays and disabilities are fully included in health and education services.
Vyšlo v časopise:
Global services and support for children with developmental delays and disabilities: Bridging research and policy gaps. PLoS Med 14(9): e32767. doi:10.1371/journal.pmed.1002393
Kategorie:
Policy Forum
prolekare.web.journal.doi_sk:
https://doi.org/10.1371/journal.pmed.1002393
Souhrn
Pamela Collins and colleagues explain the research and policy approaches needed globally to ensure children with developmental delays and disabilities are fully included in health and education services.
Zdroje
1. UN. Transforming our world: The 2030 Agenda for Sustainable Development. United Nations General Assembly, 2015.
2. UN. Convention on the Rights of the Child. New York: United Nations. 1989.
3. UNICEF. Children with Disabilities. New York: United Nations. 2013.
4. Heymann J, McNeill K. Children's Chances: How Countries Can Move from Surviving to Thriving. Boston, MA: Harvard University Press; 2013.
5. Black MM, Walker SP, Fernald LCH, Andersen CT, DiGirolamo AM, Lu C, et al. Early childhood development coming of age: science through the life course. Lancet. 2017; 389(10064):77–90. Epub 2016/10/09. doi: 10.1016/S0140-6736(16)31389-7 27717614
6. Britto PR, Lye SJ, Proulx K, Yousafzai AK, Matthews SG, Vaivada T, et al. Nurturing care: promoting early childhood development. Lancet. 2017;389(10064):91–102. Epub 2016/10/09. doi: 10.1016/S0140-6736(16)31390-3 27717615
7. Dua T, Tomlinson M, Tablante E, Britto P, Yousfzai A, Daelmans B, et al. Global research priorities to accelerate early child development in the sustainable development era. Lancet Global Health. 2016;4(12):e887–e9. Epub 2016/10/09. doi: 10.1016/S2214-109X(16)30218-2 27717631
8. Sharma R, Gaffy MF, Alderman H, Bassani DG, Bogard K, Darmstadt GL, et al. Prioritizing research for integrated implementation of early childhood development and maternal, newborn, child and adolescent health and nutrition platforms. J Glob Health. 2017;7(1): doi: 10.7189/jogh.07.011002 28685048
9. Richter LM, Daelmans B, Lombardi J, Heymann J, Boo FL, Behrman JR, et al. Investing in the foundation of sustainable development: pathways to scale up for early childhood development. Lancet. 2017; 389(10064): 103–18. doi: 10.1016/S0140-6736(16)31698-1 27717610
10. GBD 2015 Disease and Injury Incidence and Prevalence Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 310 diseases and injuries, 1990–2015: a systematic analysis for the Global Burden of Disease Study 2015. Lancet. 2016; 388(10053): 1545–602. Epub 2016/10/14. doi: 10.1016/S0140-6736(16)31678-6 27733282
11. Bhutani VK, Zipursky A, Blencowe H, Khanna R, Sgro M, Ebbesen F, et al. Neonatal hyperbilirubinemia and Rhesus disease of the newborn: incidence and impairment estimates for 2010 at regional and global levels. Pediatr Res. 2013; 74 Suppl 1: 86–100. doi: 10.1038/pr.2013.208 24366465
12. Blencowe H, Lee AC, Cousens S, Bahalim A, Narwal R, Zhong N, et al. Preterm birth-associated neurodevelopmental impairment estimates at regional and global levels for 2010. Pediatr Res. 2013; 74 Suppl 1:17–34. doi: 10.1038/pr.2013.204 24366461
13. Lee AC, Kozuki N, Blencowe H, Vos T, Bahalim A, Darmstadt GL, et al. Intrapartum-related neonatal encephalopathy incidence and impairment at regional and global levels for 2010 with trends from 1990. Pediatr Res. 2013; 74 Suppl 1: 50–72. doi: 10.1038/pr.2013.206 24366463
14. Seale AC, Blencowe H, Zaidi A, Ganatra H, Syed S, Engmann C, et al. Neonatal severe bacterial infection impairment estimates in South Asia, sub-Saharan Africa, and Latin America for 2010. Pediatr Res. 2013; 74 Suppl 1:73–85. doi: 10.1038/pr.2013.207 24366464
15. Walker SP, Wachs TD, Grantham-McGregor S, Black MM, Nelson CA, Huffman SL, et al. Inequality in early childhood: risk and protective factors for early child development. Lancet. 378(9799): 1325–38. doi: 10.1016/S0140-6736(11)60555-2 21944375
16. UNICEF. Multiple indicator cluster survey manual 2005: Monitoring the situation of children and women. New York: Division of Policy and Planning: UNICEF, 2006.
17. Bornstein MH, Hendricks C. Screening for developmental disabilities in developing countries. Soc Sci Med. 2013; 97:307–15. doi: 10.1016/j.socscimed.2012.09.049 23294875
18. McCoy DC, Peet ED, Ezzati M, Danaei G, Black MM, Sudfeld CR, et al. Correction: Early Childhood Developmental Status in Low- and Middle-Income Countries: National, Regional, and Global Prevalence Estimates Using Predictive Modelling. PLoS Med. 2017; 14(1):e1002233. Epub 2017/01/31. doi: 10.1371/journal.pmed.1002233 28135271
19. Fischer VJ, Morris J, Martines J. Developmental screening tools: feasibility of use at primary healthcare level in low- and middle-income settings. J Health Popul Nutr. 2014; 32(2): 314–26. Epub 2014/08/01. 25076668
20. Gura GF, Champagne MT, Blood-Siegfried JE. Autism spectrum disorder screening in primary care. J Dev Behav Pediatr. 2011; 32(1): 48–51. doi: 10.1097/DBP.0b013e3182040aea 21160437
21. Hix-Small H, Marks K, Squires J, Nickel R. Impact of implementing developmental screening at 12 and 24 months in a pediatric practice. Pediatrics. 2007; 120(2): 381–9. doi: 10.1542/peds.2006-3583 17671065
22. Miller JS, Gabrielsen T, Villalobos M, Alleman R, Wahmhoff N, Carbone PS, et al. The each child study: systematic screening for autism spectrum disorders in a pediatric setting. Pediatrics. 2011; 127(5): 866–71. doi: 10.1542/peds.2010-0136 21482605
23. Pierce K, Carter C, Weinfeld M, Desmond J, Hazin R, Bjork R, et al. Detecting, studying, and treating autism early: the one-year well-baby check-up approach. J Pediatr. 2011; 159(3): 458–65 e1–6. doi: 10.1016/j.jpeds.2011.02.036 21524759
24. Kobak KA, Stone WL, Ousley OY, Swanson A. Web-based training in early autism screening: results from a pilot study. Telemed J E Health. 2011; 17(8): 640–4. doi: 10.1089/tmj.2011.0029 21939382
25. Schonwald A, Huntington N, Chan E, Risko W, Bridgemohan C. Routine developmental screening implemented in urban primary care settings: more evidence of feasibility and effectiveness. Pediatrics. 2009; 123(2): 660–8. doi: 10.1542/peds.2007-2798 19171635
26. Jordans MJ, Kohrt BA, Luitel NP, Komproe IH, Lund C. Accuracy of proactive case finding for mental disorders by community informants in Nepal. Br J Psychiatry. 2015; 207(6): 501–6. Epub 2015/10/10. doi: 10.1192/bjp.bp.113.141077 26450582
27. Berens AE, Nelson CA. The science of early adversity: is there a role for large institutions in the care of vulnerable children? Lancet. 2015; 386(9991): 388–98. doi: 10.1016/S0140-6736(14)61131-4 25638660
28. Guralnick M. The developmental systems approach to early intervention. 1st ed. Baltimore: Brookes Publishing; 2005.
29. Phillips D, Shonkoff J. From Neurons to Neighborhoods: The Science of Early Childhood Development. Washington, DC: National Academies Press; 2000.
30. Shonkoff J, Meisels S. Handbook of early childhood intervention. Cambridge: Cambridge University Press; 2000.
31. Brown S, Guralnick M. International human rights to early intervention for infants and young children with disabilities: Tools for global advocacy. Infants and Young Children. 2012; 25(4): 270. doi: 10.1097/IYC.0b013e318268fa49 26213446
32. Heymann J. Forgotten families: Ending the growing crisis confronting children and working parents in the global economy. New York: Oxford University Press; 2006.
33. Engle PL, Fernald LC, Alderman H, Behrman J, O'Gara C, Yousafzai A, et al. Strategies for reducing inequalities and improving developmental outcomes for young children in low-income and middle-income countries. Lancet. 2011;378(9799):1339–53. Epub 2011/09/29. doi: 10.1016/S0140-6736(11)60889-1 21944378
34. Hamdani SU, Minhas FA, Iqbal Z, Rahman A. Model for service delivery for developmental disorders in low-income countries. Pediatrics. 2015; 136(6): 1166–72. Epub 2015/11/26. doi: 10.1542/peds.2015-0861 26598452
35. Rahman A, Divan G, Hamdani SU, Vajaratkar V, Taylor C, Leadbitter K, et al. Effectiveness of the parent-mediated intervention for children with autism spectrum disorder in south Asia in India and Pakistan (PASS): a randomised controlled trial. Lancet Psychiatry. 2016; 3(2): 128–36. Epub 2015/12/26. doi: 10.1016/S2215-0366(15)00388-0 26704571
36. UNESCO. Education for All 2000–2015: Achievments and Challenges. Paris: United Nations Educational, Scientific and Cultural Organization; 2015.
37. Raina P, O'Donnell M, Schwellnus H, Rosenbaum P, King G, Brehaut J, et al. Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatrics. 2004; 4(1): 1. doi: 10.1186/1471-2431-4-1 14723791
38. Patel V, Chisholm D, Parikh R, Charlson FJ, Degenhardt L, Dua T, et al. Global priorities for addressing the burden of mental, neurological, and substance use disorders. In: Patel V, Chisholm D, Dua T, Laxminarayan R, Medina-Mora ME, editors. Mental, Neurological, and Substance Use Disorders: Disease Control Priorities, Third Edition (Volume 4). Washington (DC): The International Bank for Reconstruction and Development / The World Bank; 2016.
39. Hooste AV, Maes B. Family factors in the early development of children with Down syndrome. Journal of Early Intervention. 2003; 25(4): 296–309.
40. Britto PR, Lye SJ, Proulx K, Yousafzai AK, Matthews SG, Vaivada T, et al. Nurturing care: promoting early childhood development. Lancet. 2017;389(10064):91–102. Epub 2016/10/09. doi: 10.1016/S0140-6736(16)31390-3 27717615.
41. Shonkoff JP, Phillips DA. From neurons to neighborhoods: the science of early childhood development. Washington, DC: National Academies Press (US); 2000.
42. UNICEF. The right of children with disabilities to education: A rights-based approach to inclusive education. Geneva: UNICEF; 2011.
43. UNICEF. Progress for children: A report card on child protection. 2009.
44. Opening Doors. Opening Doors for Europe's Children: Moldova http://www.openingdoors.eu/wp-content/uploads/2016/12/country-fiche-Moldova-2014.pdf2013 [cited 2/25/2017].
45. Heymann J, McNeill K, Earle A. Filling a critical gap: measuring work policies that affect families globally. Community, Work & Family. 2013; 16(3): 239–60.
46. Robinson LR, Holbrook JR, Bitsko RH, Hartwig SA, Kaminski JW, Ghandour RM, et al. Differences in health care, family, and community factors associated with mental, behavioral, and developmental disorders among children aged 2–8 years in rural and urban areas—United States, 2011–2012. MMWR Surveillance Summaries. 2017;66(8):1–11. Epub 2017/03/17. doi: 10.15585/mmwr.ss6608a1 28301449
47. Earle A, Heymann J. The cost of caregiving: Wage loss among caregivers of elderly and disabled adults and children with special needs. Community, Work & Family. 2012; 15(3): 357–75.
48. Atif N, Lovell K, Rahman A. Maternal mental health: The missing "m" in the global maternal and child health agenda. Semin Perinatol. 2015; 39(5): 345–52. Epub 2015/07/15. doi: 10.1053/j.semperi.2015.06.007 26164538
49. Howard LM, Molyneaux E, Dennis CL, Rochat T, Stein A, Milgrom J. Non-psychotic mental disorders in the perinatal period. Lancet. 2014; 384(9956): 1775–88. Epub 2014/12/03. doi: 10.1016/S0140-6736(14)61276-9 25455248
50. Meltzer-Brody S. New insights into perinatal depression: pathogenesis and treatment during pregnancy and postpartum. Dialogues Clin Neurosci. 2011; 13(1): 89–100. Epub 2011/04/14. 21485749
51. Surkan PJ, Kennedy CE, Hurley KM, Black MM. Maternal depression and early childhood growth in developing countries: systematic review and meta-analysis. Bulletin of the World Health Organization. 2011; 89(8): 608–15. Epub 2011/08/13. doi: 10.2471/BLT.11.088187 21836759
52. Rahman A, Surkan PJ, Cayetano CE, Rwagatare P, Dickson KE. Grand challenges: integrating maternal mental health into maternal and child health programmes. PLoS Med. 2013;10(5):e1001442. Epub 2013/05/15. doi: 10.1371/journal.pmed.1001442 23667345
53. Dave S, Petersen I, Sherr L, Nazareth I. Incidence of maternal and paternal depression in primary care: a cohort study using a primary care database. Arch Pediatr Adolesc Med. 2010; 164(11): 1038–44. Epub 2010/09/08. doi: 10.1001/archpediatrics.2010.184 20819960
54. Dave S, Sherr L, Senior R, Nazareth I. Major paternal depression and child consultation for developmental and behavioural problems. British J Gen Pract. 2009; 59(560): 180–5. Epub 2009/03/12. doi: 10.3399/bjgp09X407063 19275834
55. Dave S, Sherr L, Senior R, Nazareth I. Associations between paternal depression and behaviour problems in children of 4–6 years. Eur Child Adolesc Psychiatry. 2008; 17(5): 306–15. Epub 2008/03/28. doi: 10.1007/s00787-007-0672-6 18365134
56. Bhatia MS, Srivastava S, Gautam P, Saha R, Kaur J. Burden assessment, psychiatric morbidity, and their correlates in caregivers of patients with intellectual disability. East Asian Arch Psychiatry. 2015; 25(4): 159–63. Epub 2016/01/15. 26764290. 26764290
57. Estes A, Olson E, Sullivan K, Greenson J, Winter J, Dawson G, et al. Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain Dev. 2013; 35(2): 133–8. Epub 2012/11/14. doi: 10.1016/j.braindev.2012.10.004 23146332
58. Rahman A, Fisher J, Bower P, Luchters S, Tran T, Yasamy MT, et al. Interventions for common perinatal mental disorders in women in low- and middle income countries; a systematic review and meta-analysis. Bull World Health Organ. 2013; 91(8): 593–601. Epub 2013 Apr 18. doi: 10.2471/BLT.12.109819 23940407
Štítky
Interné lekárstvoČlánok vyšiel v časopise
PLOS Medicine
2017 Číslo 9
- Parazitičtí červi v terapii Crohnovy choroby a dalších zánětlivých autoimunitních onemocnění
- Pleiotropní účinky statinů na kardiovaskulární systém
- Statiny indukovaná myopatie: Jak na diferenciální diagnostiku?
- DESATORO PRE PRAX: Aktuálne odporúčanie ESPEN pre nutričný manažment u pacientov s COVID-19
- Význam hydratace při hojení ran
Najčítanejšie v tomto čísle
- Effectiveness of food supplements in increasing fat-free tissue accretion in children with moderate acute malnutrition: A randomised 2 × 2 × 3 factorial trial in Burkina Faso
- Oral tetrahydrouridine and decitabine for non-cytotoxic epigenetic gene regulation in sickle cell disease: A randomized phase 1 study
- Keeping it real: A journal editor in clinic
- Sustained effectiveness and cost-effectiveness of Counselling for Alcohol Problems, a brief psychological treatment for harmful drinking in men, delivered by lay counsellors in primary care: 12-month follow-up of a randomised controlled trial